SWAN (Syndromes Without A Name) UK
SWAN offers support and information to families of children with undiagnosed genetic disorders. SWAN offers resources, newsletters and leaflets that are available to view on the website.
Overview
SWAN offers support and information to families of children with undiagnosed genetic disorders. SWAN offers resources, newsletters and leaflets that are available to view on the website. Through SWAN families can access mutual support and information sharing. To register and become a member, there is a downloadable form on the website.